Prostatitis, CP/CPPS, Interstitial Cystitis, IC/PBS
- Discussion Forums
- NIH CPSI
- Stress Test
What is UCPPS?
In 2007, the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) began using the umbrella term "Urologic Chronic Pelvic Pain Syndrome", or UCPPS, to refer to pain syndromes associated with the male and female pelvises. Previously, the female version was called interstitial cystitis/painful bladder syndrome, or IC/PBS, and the male version was called chronic prostatitis/chronic pelvic pain syndrome, or CP/CPPS. Many doctors still use the old terms.
Are all forms of UCPPS the same disease?
That's what current research is attempting to find out. There are good reasons to suspect that they are, in other words that there are few differences, at the primary etiology level, between chronic painful prostate ("prostatitis") and chronic painful bladder ("cystitis"). Indeed, the central roles of the bladder and prostate in these disorders is questionable. For instance, when both men and women in the general population were tested using the (1) National Institutes of Health Chronic Prostatitis Symptom Index or NIH-CPSI (with the female homolog of each male anatomical term used on questionnaires for female participants), (2) the International Prostate Symptom Score (IPSS), and (3) additional questions on pelvic pain, the prevalence of symptoms suggestive of CP/CPPS was 5.7% in women and 2.7% in men, placing in doubt the role of the prostate gland.
What is the likely cause of UCPPS?
The most recent research has uncovered some intriguing clues as to the root cause of this enigmatic constellation of pain syndromes. These clues relate to cortisol levels in response to stress, genetic enzyme deficiencies, neurogenic inflammation, and myofascial pain syndrome. The psychological aspect of stress is implicated in several of these studies, and in susceptible individuals, stress seems to be able to trigger various hormonal, neurological and neuromuscular phenomena that result in chronic pain and allodynia in the pelvis and pelvic organs.
Any further major breakthroughs will be highlighted on this page as they become available. Bookmark and check back.
The latest news is the July 2008 meeting: Defining The Urologic Chronic Pelvic Pain Syndromes: A New Beginning - An International Symposium.
Prostatitis and Interstitial Cystitis Research
|Multidisciplinary Approach to the Study of Chronic Pelvic Pain (MAPP) Research Network|
the latest research on PubMed
Selected papers on Prostatitis and CP/CPPS
Prostatitis and CPPS
Prostatitis and Interstitial Cystitis Discussion Forums
Men - Prostatitis, CPPS, Interstitial Cystitis, Pelvic Myoneuropathy Forum (Fee required)
Men - The Prostatitis Forum (Free)
Assessment and Phenotyping of Symptoms
|UPOINT Clinical Phenotype for Chronic Pelvic Pain Syndrome|
NIH Chronic Prostatitis Symptom Index (CPSI)
Holmes and Rahe Stress Scale
Note: If you experienced the same event more than once, then to gain a more accurate total, add the score again for each extra occurrence of the event.
|300+||You have a high or very high risk of becoming ill in the near future.|
|150-299||You have a moderate to high chance of becoming ill in the near future.|
|<150||You have only a low to moderate chance of becoming ill in the near future.|
What You Can Do About This
If you find that you are at a moderate or high level of risk, then an obvious first thing to do is to try to avoid future life crises.
While this is clearly easier said than done, you can usually avoid moving house, for example, close to when you retire, or when one of your children goes off to college; you can learn conflict resolution skills to minimize conflict with other people; you can avoid taking on new obligations or engaging with new programs of study; and you can take things easy, and look after yourself.